About Xperiome™

Xperiome is a global healthtech company that helps pharma get to know rare disease patients and their conditions faster by delivering deep insights into the patient experience.

We’ve created Raremark as the place for the lived experience of rare disease.

Raremark brings together thousands of patients and caregivers who live with a rare disease, helping them to better understand, manage, and talk about the condition that's part of their life.

Members can also learn more about medical research and sign up to be informed about relevant study opportunities.

An illustration of different Xperiome processes and how they all connect together.
A screenshot of the Raremark homepage.


Get access to news and information for over 7,000 rare conditions.


Meet and support others who share and understand their specific condition.


Contribute their own experiences and tips for navigating life with a rare condition.

Our partners and affiliations



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Interested in joining the Xperiome team?

We’re always looking for talented people to join the team. Find out about current vacancies here.

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Get in touch

Interested in hearing more? Feel free to reach out to us, and we’ll make sure to get back to you as soon as possible.