Treasuring your exceptions in rare disease research
We share top 10 tips on engaging rare disease patients in clinical trials with the journal Clinical Researcher
Finding patients with a rare disease to take part in clinical research can be challenging; keeping them engaged in long research programs even more so. These patients, by definition, are few in number, so any one trial site may only have one or two patients per trial to enroll and keep engaged. So how do you treasure those exceptions—those participants who may make the difference between the trial being completed on time or not?