Voices from the front line in rare disease
Online patient communities are helping break down traditional barriers in medical research. The benefits will outlast the current pandemic, as our founder Julie Walters writes in Pharmaphorum
Online patient communities have become a vital resource for rare disease patients, and pharma is coming round to the idea of engaging with them for real-world data. Now these communities can help show us rare disease patients’ thoughts on clinical trials during COVID-19. Julie Walters tells us more.